How I Got Here
This piece below was written by a special soul; Alyssa Styles.
Margaux Gunning is a 24 year old who just over a year ago had her entire life ahead of her. Fresh out of college after receiving a BS in Nutrition and Culinary Arts, she was well on her way to building a career for herself. A native to San Diego, she spent her college years in Denver, CO studying at Johnson and Wales University. Upon completion came home and within a year relocated to Orange County to begin establishing and building a life for herself.
You may or may not personally know Margaux, but either way I think she’s worth talking about. Full of Life, Love and Light. Strong willed, independent and willing to always stand up for what’s right. Insanely sweet, funny as all hell, and carries a laugh so contagious it’s hard not to laugh along with her. Cool and chill you all want to be her friend. Highly intelligent; making her the perfect one to geek out with on all the science-y stuff. Introverted and extroverted; she’s the perfect blend. She’ll stay home and read and cook new healthy yummy food or you can take her to your friend of a friend’s social gathering because you know she’ll fit right in. When she leaves, she’s the girl that everyone is like, “who was that and when is she coming back”. Funny thing is, she probably didn’t even realize it, because… humility. She’s desperately hard not to love. She’s infectious and full of Life, Love and Light. I say it again, because I mean it. Wise beyond her years.
With a nutritional background and a certified yoga instructor, you can imagine Margaux made all the right choices to live a healthy lifestyle that promoted longevity. Always taking a holistic approach to healing… that’s Margaux.
In March of 2016, at the age of 23, Margaux was diagnosed with endometriosis. Shortly after her first exploratory surgery, her doctor prescribed Lupron injections, once a month for 6 months. Telling her if she ever wanted a chance at having children she would have to do it. It was described as putting your body into early menopause but only temporarily. Side effects will include hot flashes. But on the bright side, you’ll be able to have kids! Not so scary right… some hot flashes. “I’m already dealing with the pain of endo, I think I can handle hot flashes”, she thought.
After her first injection she began to have intense hot flashes and excruciating bone pain in her feet. Often times feeling like her body was burning from the inside out. She started to feel so uncomfortable in her own skin, she would literally scratch and scratch to make it stop. It wouldn’t. After telling her doctor about the unexpected effects, the burning, the foot pain, the feeling like she was in a fog, memory loss… he said, “all normal.” After continually being reassured it was “all normal”, Margaux followed through with a second injection. She became so debilitated; she had to permanently move back home with her mom in San Diego and resign from work.
From there things progressively got worse. She refused all future recommended Lupon injections and began trying to find a solution for the life altering effects it had already left her with. After god knows how many doctors, a hospitalization at UCSD (which is another nightmare within itself – but we’ll save that story for another day), Margaux was left at many dead ends, $30,000 + in hospital bills, and feeling like there was no doctor out there willing to help – or accept that LUPRON was the cause of the nightmare she is living. To keep it simple, her side effects include (still to this day):
- Brain fog
- Short term memory loss
- Intense hot flashes
- Severe sweating
- Irregular body temperature regulation
- Bone pain
- Excessive weight loss as a result of her body being unable to process and digest food properly
- Hormonal imbalance
- Depression / Anxiety
- Severe Constipation
There is a large earth quake from San Diego to San Francisco (SD & SF are your white matter)
Nine months into this journey, and two brain test from two different doctors later, the harsh reaality has finally been proven – in January 2017 Margaux has been diagnosed with “organic brain injury” a direct result from the chemical drug, Lupron. To make matters worse, it has damaged ALL the white matter of her brain. Think of it like this:
Then there are pillars holding up the bridge to communicate from San Diego to San Francisco (the pillars are your grey matter)
During the earthquake, the pillars fall and now there is no way for SD to communicate with SF
Margaux’s brain no longer provides her body all the information it needs to perform proper daily functions. Her entire sympathetic nervous system has completely shut down.
It’s obvious, Margaux has a long road of recovery ahead of her without guarantee she will ever be completely the same. With her organic brain injury diagnosis, she is now scheduled to start nuerofeedback, a course of action hoping to re-train parts of her brain to function normally again. In addition, she has weekly colonics because her brain does not tell her body to use the restroom properly. Due to her body being unable to process food properly she often cannot keep anything in when she does eat, leaving her extremely dehydrated and malnourished. Margaux is 91 lbs., with trouble maintaining her weight she will start to see additional tolls on her body from an onset of anorexia – an issue she is not choosing, but it’s happening.
This drug is poison and strips women and men of their quality of life.
We greatly appreciate you taking the time to read this story. We have teamed up with our good friends over at Coffee in the Shower who will be supporting what we’re doing by supplying you with our custom made unisex t-shirts. Any donation of $25 or more will receive a t-shirt! Please SHARE SHARE SHARE.Spreading the word helps in ways you wouldn’t believe – we need to get the word out about LUPRON and it’s horrific side effects. We are lucky Margaux is such a fighter and determined to get through this.
I will leave you with a message she sent me just days ago when I asked how she was doing:
“Meh Okay! Seen better days! But life could be worse!”